Saint John of God Community Services clg Saint John of God Community Services clg
At Saint John of God Community Services clg, we conduct research projects aimed to improve the lives of people affected by mental illness, both as a patient or as a carer or medical staff. The suitability of any project is assessed and validated both by management and by the Research Ethics Committee, before the project starts.
In some instances, depending on the nature of the project, access to personal data may be required. Participation in these terms is always voluntary and may be consent based. Should it be required to identify any participants (or their data), you will be contacted with all the relevant information on a research project to allow you to make an informed decision on whether to participate.
Your decision bears no impact on the quality of services you are entitled to and will be provided with by Saint John of God Community Services clg.
Data Protection Notice
Retrospective Chart Reviews
Saint John of God Community Services clg operates HSE (Health Service Executive) funded services to children and adults with intellectual disability, and to children, adolescents and adults with health difficulties. As part of Saint John of God Hospitaller Services Group, it supports approximately 8,000 children and adults annually with over 3,000 staff and volunteers. As well as providing this care, Saint John of God Hospitaller Services clg has a long history of conducting research to improve outcomes for patients. Research in mental health and intellectual disability has been well supported by the Order of Saint John of God since 1987 when the first planning and management committee was set up. The data controller is Saint John of God Community Services clg. Granada, Stillorgan, Co. Dublin.
The original purpose for processing your personal data is to deliver a healthcare service to you. Under this notice, the purpose of processing your personal data may be for a retrospective chart review study project or pre-screening for selection for inclusion in a research study project.
The legal basis for processing your personal data can be found under Article 6 and 9 of the GDPR. The legal basis for processing your data for a Retrospective Chart Review research project or pre-screening for selection for inclusion in a research study project is “legitimate interests” Article 6.1 (f) or – “processing is necessary for the performance of a task carried out in the public interest” Article 6.1 (e) of the GDPR. The condition that your special category personal data (i.e. Health data) is processed for these research activities is under Article 9.2 (j) of the GDPR: “scientific or historical research purposes or statistical purposes in accordance with Article 89” or Article 9.2 (i) of the GDPR “processing is necessary for reasons of public interest in the area of public health”,
Your personal data may be shared for the purposes of healthcare research, with health care practitioners, and individuals studying to be a health care practitioner, who are under the control and direction of Saint John of God Community Services clg. or an employee of the controller (for example, a medical records clerk) who in the course of his or her duties for the controller, would ordinarily have access to the personal data of individuals held by the controller (that were obtained for the provision of health care to those individuals), but not disclosed to another person (a third party) by the controller for a retrospective chart review unless such data is anonymised, and any findings from the study that are published must not identify an individual whose personal data was used in the study. The study will be reviewed and approved by a research ethics committee prior to commencement of the study
Therefore it is within our legitimate interests to conduct health care research for the benefit of our patients, for improvement to our service delivery, for the involvement of our patients, and to increase the knowledge base and for the academic education and continuous professional development of healthcare staff and students.
Your data or the anonymous data derived from it will not be transferred to a third country or international organisation. Your data or the anonymous data derived from it will not be transferred outside the EU/EEA. Anonymous Electronic data used for a study will be retained for 10 years. After 10 years, data will be securely destroyed by ICT of Saint John of God Community Services clg.
You have the right to refuse for your data to be included in a research study. You have the right to access, rectification, erasure, restriction, objection, and data portability for your own personal data under GDPR. Where we have collected your consent for a research project, you have the right to withdraw that consent at any time. You will have received an Information leaflet when your consent was sought. You can withdraw your consent by contacting the Principal investigator whose contact details are on the information leaflet.
Withdrawing your consent will bear no impact on the quality of services you are entitled to and will be provided with by Saint John of God Community Services clg. The anonymous data derived from the personal data does not attract the same rights as anonymous data falls outside the GDPR.
As research studies are conducted under the amended Health Research Regulations, your consent may not be sought at all times.
Any proposed research will be first reviewed and must be approved by a Research Ethics Committee prior to commencement of a study. The Research Ethics Committee is a body independent from Saint John of God Community Services clg.
You may exercise any of your rights by contacting the DPO at Saint John of God Community Services clg, Stillorgan, Co Dublin by e-mail: dpocs@sjog.ie. You may request additional information regarding a research study you are taking part in by contacting the Principal investigator whose contact details are on the information leaflet.
If you are dissatisfied with the manner in which your personal data is being processed, you may lodge a complaint with the Data Protection Commission. You can do so by visiting their website: www.dataprotection.ie.
DETECT Service & St. John of God Community Mental Health Service Clg.,
Data Protection Notice for Service Users
The General Data Protection Regulation (GDPR) is a new EU regulation which came into effect on 25thMay, 2018. GDPR updates existing data protection law and will place a greater accountability on organisations when using your personal information and give you greater control over your personal information. This notice explains what information about you we process, why we process your information, who we share your information with and what your rights are with respect to your personal information.
What information do we process?
In order for the DETECT Service to deliver services to you in an effective manner we need to collect and hold various pieces of personal and sensitive information about you. The information we collect varies depending on what type of service and support you receive.
Examples of the type of information we may hold include:
Why do we have this information?
We have this information because we have a contract with you and the HSE to provide you with services and supports. We have a vested interest in ensuring that the information we hold about you is up to date to ensure we give you the best service possible. We are bound to hold your information as set out by the law in relation to Data Protection, and various Health and Finance Acts.
We collect this information as part of our quality improvement activities such as service evaluation as well as internal and external clinical audits. This information may also form part of a paper or report that could be published in a public or professional publication. However, all personal information is completely anonymised and aggregated before being submitted for publication.
The DETECT Service, is part of the Saint John of God Community Services Clg. We conduct research projects aimed to improve the lives of people affected by mental illness, both as a patient or as a carer or medical staff. The suitability of any project is assessed and validated both by management and by the Research Ethics Committee, before the project starts. In some instances, depending on the nature of the project, access to identifiable information may be required.
Participation in these terms, is always voluntary and consent based. Should it be required to identify any participants (or their data), you will be contacted with all relevant information on such research projects to allow you to make an informed decision on whether to participate.
Your decision bears no impact on the quality of services you are entitled to and will be provided by the DETECT Service and Saint John of God Community Services Clg.
How is your information shared?
It is up to us to protect this information and share it only with those who need to know in order to give you the best service we can. We share your information with people who work closely with you so that they can do their job. We may share some information with the various state bodies as part of our legal compliance and for funding purposes. We may share some of your information with people you have said we could, for example members of your family. We may share some of your information with some suppliers to ensure you receive the appropriate aid. We may share some of your information with healthcare professionals. If for example you needed to go to hospital in an emergency we will share your details and medical history with the hospital.
What are your rights under Data Protection Law?
You have the right to know about and look at the information we hold about you. The new regulation say that we have to get back to you within 30 days to let you know how you can see your information, or a reason why we have refused your request. If we refuse your request to access your information, or you are not happy with what we are doing with your information, you can contact the Data Protection Commissioner’s Office, Canal House, Station Road, Portarlington, Co. Laois R32 AP23 or at info@dataprotection.ie .
The Data Protection Commissioner will check to see if we are holding your information within the law, and will ask us why we have refused your request. If we do not have a lawful reason for refusal they will direct us to release your information to you.
We are telling you this because the GDPR requires us to ensure that you know we have personal and sensitive information about you, why we have it, and what we do with it. You have the right to ask questions about the information we hold and to correct any information you think is incorrect in relation to you. Saint John of God Community Services do not use any automated processing in relation to your data. If we wish to use your information for any other purpose outside of service delivery and any legal obligations we need to ask you for your consent and you have a choice to grant it or not.
What do you need to do about this?
You do not need to do anything about this notice, you just need to know that we keep your personal and sensitive information safe and only use it for the purpose of providing you with the best service we can.
If you have any questions about Data Protection or GDPR, you can contact our Data Protection Officer at dpocs@sjog.ie or the Operations Manager at Community Mental Health Services: sheila.banks@sjog.ie